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ADVOCACY

Treatment Action Group (TAG) works to promote the participation of affected communities in tuberculosis (TB) research and to ensure that research reflects community needs as well as scientific priorities. TAG worked with partners at Take That TB to develop an online platform for TB patients and survivors from around the world to share experiences and strategize on advocacy. TAG coordinates two groups of research-literate community activists—the Global TB Community Advisory Board (TB CAB), and the Community Research Advisory Group (CRAG) to the U.S. Centers for Disease Control and Prevention’s Tuberculosis Trials Consortium. Both groups act in an advisory capacity to institutions conducting TB clinical trials. TAG is a partner of the Global Coalition of TB Activists (GCTA), which empowers patients and mobilizes communities to influence the global TB agenda. You can learn more about these four partners by following the links below:

Global Tuberculosis Community Advisory Board (TB CAB) advises institutions conducting clinical trials of new TB drugs, treatment regimens, diagnostics, and vaccines, and provides input on study design, early access, regulatory approval, postmarketing, and implementation strategies.

The Community Research Advisors Group (CRAG) is an international, community-based advisory body that works to ensure the meaningful participation and engagement of affected communities in research conducted by the U.S. Centers for Disease Control and Prevention’s (CDC’s) Tuberculosis Trials Consortium (TBTC).

Take That TB
Treatment Action Group, together with the website Take That TB, has created a listserv for TB and multidrug-resistant TB (MDR-TB) survivors and patients interested in conducting advocacy and connecting with other individuals in this community. The listserv provides a platform for TB patients and survivors from around the world to share experiences, support one another, and strategize on advocacy. Currently, the listserv includes members from over 15 countries. To join the group, please contact mike.frick@treatmentactiongroup.org.

The Global Coalition of TB Activists (GCTA) represents voices of TB-affected communities and uses patient empowerment, strategic advocacy, and community mobilization to affect global change in the fight against TB.


Toolkits


The Zeroes Campaign

In 2012, a group of activists, researchers, clinicians, implementers, policy makers, and foundation and government staff, tired of unambitious global tuberculosis (TB) targets for reducing disease burden, met in Cambridge, Massachusetts. During the three-day meeting, they developed a new global TB strategy founded on three key realities:

  1. TB is preventable and curable.
     
  2. The main driver of today’s unnecessary TB deaths, new TB infections, suffering, and stigma is lack of political will.
     
  3. Every country in the world has the potential to reach the goal of zero TB deaths, zero new TB infections, and zero TB suffering and stigma.


The Zeroes Campaign calls for global action and a new global attitude in the fight against TB. Over 500 individuals and organizations have already signed on and are committed to achieving zero TB deaths, zero new TB infections, and zero TB suffering and stigma, and in 2012 the campaign was endorsed as a strategy by the Stop TB Partnership.