The 2022 Community HIV Cure Research Workshop took place virtually this year due to the ongoing COVID-19 pandemic. There were two sessions, the first on Tuesday February 8th and the second on Tuesday March 1st. Video recordings of the sessions are posted below.
This year we had discussions about the ethical issues brought up by research towards a broadly accessible cure for HIV and soliciting community input on terms and analogies being used by scientists working in the HIV cure field.
We heard from a panel of Black transgender women, who will share their concerns about the lack of involvement and representation of transgender women in HIV cure-related research and their views on ways we advocate for this to change.
Participants had a chance to ask questions directly to the scientists who have identified the Esperanza Patient, the second person to have spontaneously or naturally been cured of their HIV; who are conducting cure-related trials using broadly neutralizing antibodies; and who are concerned about the dearth of research available to people living with HIV in low- and middle-income countries.
Some of the first reports on the important science presented at CROI 2022 related to curing HIV were released, given by renowned researchers who attended this year’s conference.
The co-hosts for both sessions were Danielle Campbell, MPH (AIDS Treatment Activists Coalition; DARE) and Michael Louella (Community Engagement Project Manager, Fred Hutch).
Pre-CROI Community HIV Cure Research Workshop – Session 1
Tuesday, February 8, 2022
11:00 AM – 1:10 PM Eastern / 8:00 AM – 10:10 AM Pacific
Facebook event page: https://www.facebook.com/events/607655153655657
Agenda
Welcome and Introductions
Danielle Campbell, Michael Louella
Ethical Considerations for HIV Cure Research (Video)
Nora Jones, Danielle Campbell
Black Trans Women & HIV Cure Research – Panel Discussion (Video)
Toni D’orsay, Brighton “Bee” Meki, Mallery Jenna Robinson, Sydney Rogers aka Miss Barbie-Q
Exceptional Elite Control: the Esperanza Patient (Video)
Natalie Laufer, Gabriela Turk, Xu Yu
Discussion of HIV Cure Research Terminology (Video)
Lynda Dee, Karine Dubé
Post-CROI Community HIV Cure Research Workshop – Session 2
Tuesday, March 1, 2022
11:00 AM – 1:00 PM Eastern / 8:00 AM – 10:00 AM Pacific
Facebook event page: https://www.facebook.com/events/6731582206912808
Agenda
Broadly Neutralizing Antibody Trials (Video)
Marina Caskey
HIV Cure Research in Low- and Middle-Income Countries (Video)
Thumbi Ndung’u
Community Engagement and HIV Cure Advocacy in Low- and Middle-Income Countries (Video)
Phillister Adhiambo
Report-Back on Cure-Related Science at CROI 2022
Luis Montaner, Katharine Bar, Lishomwa (Lish) Ndhlovu, Deborah Persaud
Workshop Sponsors
AIDS Treatment Activists Coalition
AVAC
BEAT-HIV Community Advisory Board
CRISPR for Cure
DARE Community Advisory Board
Enterprise for Research and Advocacy to Stop and Eradicate HIV (ERASE-HIV)
European AIDS Treatment Group
HOPE Collaboratory
I4C Community Advisory Board
NMAC
PAVE Collaboratory
REACH Collaboratory
Treatment Action Group
University of Washington/Fred Hutch CFAR Cure Scientific Working Group