Broad Coalition of HIV/AIDS Advocates and Advocacy Organizations Urge Patient Groups to Support AllTrials Initiative

August 5, 2013

Broad Coalition of HIV/AIDS Advocates and Advocacy Organizations Urge Patient Groups to Support AllTrials Initiative

Reported Pharmaceutical Association Efforts to Enlist Opposition to the Initiative Are Decried

The undersigned HIV/AIDS advocates and advocacy organizations today issue a call to patient groups worldwide to sign up to support the AllTrials initiative (www.alltrials.net). Led by Dr. Ben Goldacre and Sense About Science, AllTrials aims to address the dangerous information gap that opens up when data from clinical trials of new therapies or therapeutic approaches are not reported (or the trials are not even registered). The initiative has already achieved overwhelming support from a multitude of highly respected organizations, medical associations, patient groups, pharmaceutical companies, and other entities and individuals.

In light of these facts, it is extremely disturbing and regrettable that, according to a report in the Guardian newspaper published on July 21, the two major pharmaceutical trade groups—the Pharmaceutical Research and Manufacturers of America (PhRMA) and the European Federation of Pharmaceutical Industries and Associations (EFPIA)—have launched an effort to try to enlist patient groups in a campaign to oppose AllTrials. This effort must be vociferously opposed, and pharmaceutical companies that belong to these trade groups should publicly reject it.

We call on all patient groups and other stakeholders who have yet to sign up to support AllTrials to do so.

We call on PhRMA and EFPIA to stop their last-ditch attempt to avoid the disclosure of all clinical trials results, which is essential to the improvement of public health.

David Acosta

ACRIA

AIDS Action Baltimore

AIDS Foundation of Chicago

AIDS Policy Project

AIDS Project Los Angeles

AIDS Treatment Activists Coalition

AVAC

Brook K. Baker

Baltimore Student Harm Reduction Coalition

David Barr

Canadian HIV/AIDS Legal Network

Julie Davids

European AIDS Treatment Group (EATG)

Fair Pricing Coalition

Global Justice Institute

Global Network of People Living with HIV (GNP+)

Global TB Community Advisory Board

Global Youth Coalition on HIV/AIDS (GYCA)

Gregg Gonsalves

HCV Fair Pricing Coalition

Health GAP

HIV Fair Pricing Coalition

HIV i-Base

HIV Prevention Justice Alliance (HIV PJA)

Melissa Hope Ditmore, PhD

International Foundation for Alternative Research in AIDS

International Rectal Microbicide Advocates (IRMA)

Carole Leach-Lemens

Mark Milano

NMO Action

Positive Malaysian Treatment Access & Advocacy Group (MTAAG+)

Positive Voice, Greece

Project Inform

Salamander Trust

The Maryland Hepatitis Coalition

The Sero Project

Treatment Action Group

VOCAL-NY

Yale Global Health Justice Partnership

Zephyr LTNP Foundation

Treatment Action Group contact:

Richard Jefferys

richard.jefferys@treatmentactiongroup.org

646-243-8370