Engagement of affected communities in research is vital to ensuring that the science is ethical and responsive to community priorities and needs. This module covers the history of community-based HIV research advocacy and outlines principles and best practices for community and stakeholder engagement in HIV cure-related research.
Community & Stakeholder Engagement in HIV Cure-Related Research (PowerPoint)
Community & Stakeholder Engagement in HIV Cure-Related Research (PDF)
Additional Resources
- AVAC/UNAIDS Good Participatory Practice (GPP) Guidelines
- Denver Principles, 1983
- Meaningful Involvement of People with HIV/AIDS (MIPA)
- The Greater Involvement of People Living with HIV (GIPA), 2007
- HANC Recommendations for Community Engagement in HIV/AIDS Research, 2020
- FHI 360 Stakeholder Engagement Toolkit, 2012
Background References:
- Day S, Blumberg M, Vu T, Zhao Y, Rennie S, Tucker JD. Stakeholder Engagement to Inform HIV Clinical Trials: A Systematic Review of the Evidence. Journal of the International AIDS Society 2018; 21(S7): e25174.
- Lau JSY, Smith MZ, Allan B, Dubé K, Young AT. Time for Revolution? Enhancing Meaningful Involvement of People Living with HIV and Affected Communities in HIV Cure-Focused Science. Journal of Virus Eradication 2020; 6(4): 100018.
- MacQueen KM, Bhan A, Frolich J, Holzer J, Sugarman J, Ethics Working Group of the HIV Prevention Trials Network. Evaluating community engagement in global health research: the need for metrics. BMC Medical Ethics 2015; 16:44.
- Adhikari B, Vincent R, Wong G, Duddy C, Richardson E, Lavery JV, Molyneux S. A Realist Review of Community Engagement with Health Research. Wellcome Open Research 2019; 4:87.